Back to a wall. Roll the spine, suck in concrete.
It will pass. It will.
I watch Dee break down from a distance, watch her pull the colors and shapes of her soul apart. Her song scorches the street, scattering the normal people. They gasp into safe clucking corners of the mall. Cardboard coffees wave in our direction, sacred icons against her screams.
Anchor. Cut roots deep into the ground. Inhale the earth. I am a giant, immovable. If I am not, my daughter will sweep the flagstone streets with me.
‘You’re okay, Dee. You are… alright.’ My voice is out of tune, weak.
‘Trick her brain, Hannah,’ the doctors had said, ‘tell your daughter she is alright, alright…’ ‘Autistics don’t really feel emotion.’ Slap. On went the label. Pluck. Out flew the packaged crap.
But what went wrong today? Can I rewind the record, darling Dee, change the music?
I am here for the music, for Dee, like her father had been. Downtown in Louisville, we are tucked away under Galvin’s dark green canopy with its zippy waiters nodding distant love to our girl. This is Abe and Dee’s special place on the fringe of the Bluegrass Festival, where she can catch meandering threads from banjos and guitars. Dee needs this distance, far from the rainbow flags cracking in the air and the stamping, hooting crowd at the far end of the mall.
‘Sorry ma’am… but…?’ A man edges in.
Smile Hannah, stand tall, spread calm. It is ordinary.
‘Can I… er… help?’ Peppermint breath tickles my face; the man is too close. The distraction wilts me. I keep my eyes on Dee but flick a smile for the stranger. Take off Superman, you’ll only mess up.
‘Thank you, sir, no. You’re kind, but please do not look at my daughter. Keep your eyes on me and walk away.’
‘But…’
‘Now.’
My back is bleeding into the wall. I plead. ‘Her father will be here soon. She’ll stop then.’
‘Music don’t lie girl, but people do.’ Abe’s mantra bites me.
‘Please go, sir, and don’t look at her.’ Dig deeper Hannah or fly away. Dismissing him, I call to Dee.
‘Need a little sugar in your bowl, honey? Dee?’ I can’t find the right tone; my voice rises but it’s too thin.
‘Sing our little girl home woman, give her those Bessie Smith Blues.’
Sweet-Breath Superhero, with love, light, and I-must-interfere in his eyes, defies me and gapes at Dee. The words ‘don’t look’ lit up his brain. It’s like when you crave chocolate. If you say, ‘don’t think about chocolate’ the sound of ‘choc-o-late’ will fill your mouth with decadence and swell in your throat, ’til you will rob, murder and maim to get chocolate. Compelled to look now, the stranger’s eyes consume Dee, with no more choice than a starving man gorging on pigswill. I swear people get off watching my girl’s pain.
Dee sees the enchanted onlooker. Not through her eyes; they are filled with her own fists. One at a time, alternate. One then two. One then two. Bash. Slam. Thump. Hammer. Smashing down to free her own music. But her other sense sees the stranger, absorbs him.
A gift or a curse? People of her kind, they say, get 40 channels at once. They see, hear, smell, sense you, me, him, them, it and it and it. They can’t work the remote.
I take a step and put myself between Dee and Superman.
I lose the wall. I lose the earth. So be it.
She comes at me, sightless.
The man runs away with his sweet mouth shaping silent obscenities. Someone else hit 911.
The Georgetown Community hospital know us well. We don’t need to come here much when her father is around. When Abe is here, he tricks the air that batters Dee in these moments, weaving music, poems, and love. Medicos talk about triggers; Abe works in ‘lost soul notes’.
‘Dee… honey, listen, I’ve got that sad ol’ soul, it can’t hurt anymore sugar. It’s in my guitar. I’m playing it away… it’s beautiful now, listen.’ Her misery becomes a feathered dandelion, sung away on a breeze. I have stood between them to feel the pulse that he takes and turns and lets go. I’ll hang there and see, sense, understand… nothing.
Angels haunt our ER, not nurses, and by Christ they can laugh. I want my God to be female, a stand-up comedian.
‘Dee,’ our angel croons, ‘I’m gonna put you up against that baaaaad arse man who’s messin’ up our almighty U.S. of A. Trumpet him off darlin’, wham bam, thank you, ma’am. We’ll pay you a million.’ The nurse is coming at me with a steel bowl of surgical goodies. ‘Now girl, let’s hug your Mom here and we’ll do the embroidery on her face first. She loves you, Dee.’
The nurse threads a needle through my skin and Dee stares at it from her chair. I try so damn hard not to flinch, not to trigger her. Not to be normal. Pick the autistic here guys, me, or her? Laughter gets garrotted before it can bellow out my mouth, proclaiming insanity.
Sometimes an ugly soul of a nurse will watch and whisper, ‘Again? Jesus! Section the damn girl, put her away.’
‘Don’t even think about it, our girl stays with us.’ Pardon Abe? I can’t hear you anymore.
Whenever Abe is AWOL, ‘the question’ waits at the hospital exit, like a loyal doorman. ‘Where’s Dad?’
‘He sang himself away sweetheart. Remember?’
‘Need a little sugar in my bowl, Mom.’
‘Yes, I know Dee, I know. Let’s go home.’
Home can be tough, with and without Abe. Dee was eight-years-old the first time he walked out.
‘It’s enough. No more. I am a muso.’
It was that simple and that wrong.
Can people be just one thing in their life? Can’t I be a trapeze artist and a mother if I want? I’ve forgotten how to do that, though: want. Don’t get me wrong, there are beautiful times. Times when I shine because my girl is all kinds of awesome. Like at school… she’s a champion. Telephone calls from school make my day, mostly from Mrs Rowe the principal. ‘She’s the Trumpet, Mom.’ Dee can’t explain why Mrs Rowe is a Trumpet. Loud, in your face perhaps, likes to take the solo? Whatever, Dee sure knows how to play that Trumpet. The calls kick in with, ‘Mrs Asher… Mrs Rowe here… no, no it’s nothing bad…’ and last Monday the story was ‘… only Dee’s stuck in a solo again. How can we nudge her along?’ God, I love my girl, she makes that school work for their trophies. She’s always a step ahead.
‘What’s she singing?’
‘She’s in fine voice, Mrs Asher, but we need to go for a banking training session. It’s…’ she flounders.
‘On the Road Again?’ I offer.
Mrs Rowe grunts, hating to be behind tempo.
‘Willie Nelson style, leave-me-here-I’m-happy, or a Canned Heat version, I’m-too-cool-for-school-I’m-running-away-again, Mrs Rowe?’
‘Without the benefit of your musical background, Mrs Asher, I’d suggest the former, Willie Nelson, as she’s smiling.’
I laugh down the phone. This one’s easy for me.
‘She’s just content to stay in the classroom. Ask her what she’s saving for. There’s a picture of a guitar in her diary. That’ll get her out to the bank.’
‘Okay.’ A dying fly fizzes in the telephone line.
I yell at the ceiling. ‘Thanks for the help Mrs Asher… you are amazing. You deserve a medal, Mrs Asher, champagne… a lifelong trip above the world in an airship, Mrs Asher, forever free?’ But it’s not about me I suppose; the school is good for Dee. It does its best, has a go at rearranging the fragmented mosaic of her mind. Mrs Rowe, God bless her, is its super glue. But she claims the prizes when any kid tip-toes towards the normal end of ‘special’. Mothers – yep it is mostly mothers who hang around – seem to count for zilch. Sometimes even, you are the enemy. There’s always a dig or two at pick-up time, like last week.
‘A wonderful morning with Dee, Mrs Asher, but the afternoon…’ I scan the room for my girl, my toes curling into the floor, ready. ‘We accept that life is ultra-busy for all our parents, but could we mention again the healthy eating programme, certain foods…?’
‘Chocolate, you mean chocolate.’
‘Well yes, such a behaviour changer, Mrs Asher.’
Sure is a behaviour changer, sweetheart. It can stop a left hook at 20 paces. ‘Hey, Dee,’ I’d dodged the slap that morning, ‘here’s Mr Goodbar for school, catch, darling, catch.’
‘That cheeky Dee, did she sneak chocolate into her bag again, Mrs Rowe?’
As I tuned out the Trumpet that afternoon, I watched my girl cross the classroom. Dee is larger than other kids but looks great on the days she lets me brush her hair and get her buttons right. Abe loves her crushed up mane… loves it to be ‘… free and wild woman, she must be free.’ With his copper skin and my daisy-yellow hair, our girl is a sun-bound flower, a downright-too-delicious-to-be-real-flower that blossoms when its sky is bright. Damn near stops my heart when I catch her smile. But when her sun goes down, she shrivels. I can’t always reckon what her sun looks like to bring it back. Abe can taste its shape, its melody, its warmth and he knows where it hides.
He gave our baby girl language through song.
She’s a Cute Thing… tapping, smiling, singing, her fine fingers quick and gentle on her dress…
… scatting, T’ain’t nobody’s biz-ness if I do, unblinking eyes under a curtain of curls…
… open hands drumming our creped oak table…
… on bad days she might wail Dreaming… slamming a chair into the wall’s deepening scars…
… now a Sweet Black Angel, beating time with her body against our glass door… to a shattering finale.
Maybe the psychs are right. Perhaps Abe duck-shoves his own emotions over to our girl, knowing she is empty. Anyhow, Abe says I don’t know either of them. ‘You’re out of tune with my life’ are the only lyrics he leaves me, each time he runs. I miss the cues they both give me, like the loser kid stuck way outside the band, holding a triangle and silver wand high… praying, sweating, counting then… missing. Always fucking missing. Without Abe, Dee is too often my sweet black angel.
I didn’t remember much after Abe walked out the first time. Dee searched the rooms for his funny upside-down-mop body. Stick-thin jangling limbs, topped with grizzled dreadlocks falling into his face. Distracted, he left his dope stash in my knicker drawer. I seemed to sit awhile in Starbucks. ‘Another cup, Ma’am?’ Baristas think out loud when you’re stoned. ‘You can’t fool me woman, I see you, pretending. These strangers are your friends, I’m your family. Sitting is your job. It’s okay girl, it’s okay.’
I went home sometime. A neighbour smashed in the front door, sometime. Dee and her hunger beat me. Meals missed… nine, ten? She let the whole damn neighbourhood know when our fridge was empty. They took my kid away. Child abuse they said. Funny that, as it was me with the broken bones. It took a while to feel. Dope is a magic blanket.
A social worker held my hand, the unbroken one, as she led me through the queues of people-like-me in her office. A musk of earth and burnt popcorn still clung to my skin, the tell-tale smell people smile at or turn away from, as you try to make like normal in your day.
‘If you don’t give her up to the State, Hannah, they will take her anyway.’ I never called this woman by her first name. I never called her anything. I didn’t like her using my first name, but didn’t say so. ‘This way you’ll get some control. Isn’t that important for you, Hannah?’ There she goes again.
The State found Abe in Washington, far away from our Kentucky bluegrass land. He yelled and screamed to get his beautiful daughter ‘… outta that stinkin’ cesspit.’
‘No, Mr Asher, your child is not in prison, as you say.’
‘What’s that fucking electric fence for then mister, to keep cows out?’
They signed Dee out to him, but not to me. I’m the ‘abuser’.
The three of us danced around each other when they sent us home. A slow, blues beat. Abe claimed the solos, the hero of our dead little trio. His eyes would move over my body some days. Most times though Dee claimed him, sitting, standing, swaying; near enough to take the breath of his music right into her soul.
Cymbals crashed in the morning gig of bourbon bottles jettisoned to the trash. He was distant and tired on dope, but the Wild Turkey got him jagged and fast. I was too tired and slow to dance away from his fury. The paramedics know our house, know me, know Dee. It was easy for Abe to shrug, palms outstretched and mutter our daughter’s name when they asked what happened. Silent, they trussed me up into their meat van like a piece of brisket.
‘Now, honey, I love your girl like my own but it’s ‘bout time you popped her a little happy pill or two or she gonna kill you.’
My throat tightened as the nurse assumed my girl smashed into me again.
‘Hey Hannah, what I done said wrong? Don’t give me that evil eye.’ She flipped a tepid laugh, glancing behind me. ‘Where is that girl of yours anyhow… who’s she with?’
You can choke on words. The nurse spun me round and belted me with a tough medical punch straight between the shoulder blades. It knocked me onto the bed, but I could breathe again. The fist dislodged the words ‘Abe did it’, alongside an avalanche of self-loathing. The nurse took me and held me like I had just been born.
‘I’ll get the goddam law girl.’ Rock and a hard place here.
‘Tell ‘em and you’re down the Swanee, woman,’ he’d whispered, before the paras took me. ‘They’ll get Dee. You’ve got six months of that probation stuff, no chance letting you alone with our girl.’
I neglected my child they said. Didn’t matter Abe’d up and flown away first. Forgetting to ever come home seems neglectful to me. Forgetting not to beat the crap out of me again seemed a bit neglectful too.
The musos had changed key when I got home from hospital. Dee had been at school when Abe’s rage moved from his eyes to his fists, so she couldn’t know what happened. But you sense a shift, when the singers play around with your best song; a few extra chords, a change of pace. All that was going down in our house. Same but different.
Dee touched my face that night.
I hadn’t meant to push her, it was a reflex, a defence, ‘I am so sorry Dee, you made me jump. Come here sweetheart.’
She’d never wanted to touch me before. My body softened as her fingertips reached out and grazed across my cheek, close to the stitches by my left eye. She traced the colors of the bruise down my face, then walked away. Abe strummed, guitar across his knee like a baby, head bowed, playing into himself. There weren’t any sounds between him and I. But Dee turned her back on him as she sang. I was moving and cooking and cleaning, but I swear she was singing to me.
She touched me again the next day, on the way to school. I held the wheel of the car one handed, slow, easy riding in the traffic build up. My right arm rested down on the seat. She started a rhythm, with one finger, on my wrist.
An unspoiled breath came from someplace deep in my body. That breath, the moment your baby shows you… tells you, she knows who you are.
Abe would have picked up her song, a cheap game show winner, pressing the bell and crying out the answer, arms raised, calling for the love. But the skin at the end of Dee’s whip-smart finger knew I was listening.
At the school gates, she up and ambled away, but I sat. Right then there was no place else to be.